Chất lượng cuộc sống của người bệnh lupus ban đỏ hệ thống tại Khoa Khám bệnh, Bệnh viện Bạch Mai năm 2021

To evaluate the quality of life (QoL) of systemic lupus erythematosus (SLE) patients in Outpatient Department Bachmai hospital 2021 and some associated factors. Materials and methods: in a cross-sectional study, the quality of life (QoL) was measured by Lupus-PRO questionnaire in 91 SLE patients. The relationship between QoL scores (0 – 100) with age, gender, duration of SLE, age of onset and clinical manifestations were also evaluated. Results: 72.53% of patients had moderate to bad QoL, the average Lupus-PRO score; Health-Related QoL (HRQoL) score and Non-Health-Related QoL (N-HRQoL) score were 63.09  15.54; 66.92  12.22 and 59.26  20.97, respectively. The QoL was significantly lower in ≥ 40 years old patients (p <0.05), durations of disease ≥ 5 years (p <0.01), having comorbidities (p<0.05), SLEDAI score ≥ 5 (p<0.01) and having more than 4 clinical manifestions (p<0.05). Conclusion: Most of SLE patients had moderate to bad QoL. The QoL was significantly lower in patients ≥ 40 years old, disease duration ≥ 5 years, having comorbidities, SLEDAI score ≥ 5 and more than 4 clinical manifestions.